Gosh, my life never provides for much dullness, despite my efforts to avoid my family and friends and even strangers for the most part, at least in the physical sense but even in other ways. Somehow, though, they find a way to reach me – and yes, of course I am also allowing that to still occur, for whatever reasons.
My dad has been showing increasing signs of memory loss and confusion in recent months, quite notably when I was at the hospital with him, but even more starkly through WhatsApp messages… the painful thing about text is that it captures what was said in an unmistakable way, yet he still doesn’t seem to notice that he’s repeating his stories… so I finally pushed myself to read more about different types of dementia in the hopes of understanding what it is that’s happening to him and how best to approach dealing with him and the condition as it worsens.
Sounds like it’s probably related to the Parkinson’s that he’s had for about 6 years, in which there’s an associated condition called dementia with Lewy’s bodies. After days of stressing about just the thought of whether I could handle him properly, yesterday evening I finally meet him for tea and tried to gauge how things are, what meds he’s actually on and so forth.
On the plus side, I think I had psyched myself up (or down, perhaps) so much by worrying about this for days that the reality wasn’t nearly as stressful as many of the vivid scenarios I had anticipated. Or perhaps he was just having a slightly better day. Still, by and large it was like one of our previous coffee sessions, in which he did ramble on a lot about the same old complaints of his marriage and children, but he mostly managed to keep his thoughts in some sort of order. I made him laugh quite a bit as well, which was nice.
But towards the end I could see that his anxiety was building about having to go home and face his insane wife again (she’d called at least 9 times and texted repeatedly just to ask for “urgent groceries” – trust me when I saw the house is literally full of groceries that end up getting tossed out upon expiry… yes, literally.) He’s very easily agitated by her, as I am as well, obviously. Difference is I made the difficult choice to leave and he hasn’t and he’s increasingly aware that with his growing mental frailties, that choice is slipping further away each day. So he became more confused and repetitive, almost as if he was unconsciously hoping I’d let him stay out a little longer… but I had to go, we had spent 7 hours together and I was left quite drained and in urgent need of a quiet smoke (I never smoke around them) and some down time.
The sad thing is that today I got yet another rambly message from him. Disjointed, very emotional, repetitive and even asking to meet again today 😦 Sigh. On Saturday I had talked about this with my friend K who spent 4 years caring for his elderly mom who had dementia while his siblings just ignored the whole thing with a simple, “If you wanna send her to a home, we can split the cost.” She passed away 2 years ago and he’s still only just starting to come to terms with all the pain, hurt, anger and injustice of it all. He’s stopped speaking to his siblings too and we’ve discussed the whole concept of family responsibility, blame-shifting and illusions of love and choice many different times. So of course he cautioned me to think twice before committing myself to my dad’s care, especially as I’m sensitive to the details of what “best care” would look like, among other things. K is right, of course, but as per his situation with his mom, he didn’t care for her so much because he wanted to – not really – but because if he didn’t, then she’d be left with nothing else and that just seemed too wrong to him.
Bear in mind that K comes from a wealthy family in which the nursing home option would’ve been the best goddamn one available. In my case, we can’t afford even mediocre homes (mostly cuz the other siblings won’t pitch in fairly) and anyway my dad is way too stubborn to “give up” on his “own home” for a while more. But the truly heartbreaking thing for me is that this intelligent man is forced to live not just with his increasingly deteriorating mind but in an increasingly inhumane space for which he has paid while someone else insistently destroyed it, piece by piece.
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Jesus. My dad just called with this long rant about how last night when he went back, my mother accused him of “dressing up nicely and going out with some woman”… and then she told him she’d gone to his room to bring down some of his meds (he’s having trouble walking after the surgery) and she found “condoms” in his cupboard. Jesus fucking Christ. The worst thing is that this is just a pathetic re-hash of previous stories she’s cooked up. So of course he loses it, storms upstairs and brings down what is apparently multi-coloured candies of some kind that he bought at his last hospital checkup…. he also tells her that he was out with me, to which she says, oh that’s okay then.
What the fuck is wrong with these people. My idiot brother was there and starts shouting at her to apologise, which she does but my dad is already so worked up that he threatens to hit her, yada yada but ultimately he decides it’s not worth it. This morning she’s back to asking him to do shit for her as if nothing had happened last night.
See, the thing is, I cannot allow myself to emphatise too much, even with him, because he has enabled this sick telenovela to keep going by playing along with her BS instead of leaving. Not hitting her or hitting her isn’t a relevant plot twist, but he keeps fixating on that instead of doing something that would actually be useful for himself. So that is a choice on his part and I know that. He’s partly afraid of being alone, partly afraid of how she’ll spin the story to their mutual friends, relatives, etc and there’s other bits to this that only he would know about, of course. But yeah, the baseline still remains that he doesn’t really dare make a meaningful change to this grotesque and highly unnecessary turmoil.
I know that on some level he wants me to intervene for him but I’ve told him why that won’t work and I am finally able to not pretend to myself that I am able to “make” her do anything. I have tried that too many times to know better. The only person she even pretends to listen to is my eldest idiot brother, and that’s purely based on their Indian mother-eldest son relationship (eldest sons are nicknamed “raja” in Tamil, which literally means king) so there’s nothing worthwhile for me to do in this shit-show than to keep reminding my dad to tell my brother about this.
That my father is reluctant to talk to my brother is also a mark of that male ego BS of “saving face”, but again, this cannot become my problem because I have no role to play in it. So that’s how I left it with my dad just now, despite him pushing me to have dinner again with him tonight… sigh.
So exhausting. I knew it would be, that’s part of why I was trying to avoid it for the longest time. They are such a drain, such a distraction from my own needs, such a polar opposite to anything that is good in this fucked up world.